I have wanted to create a blog for more than two years. It never happened because my health took a skydive, and because I thought I would neeo tell part of that storyod an audio blog. Big mistake. But part of my medical nightmare was forgetting how to type and taking a half hour to create one post. I am through all of that but I do believe I have to tell part of that story as a warning. This is not a medical blog. It is a Storytelling blog. Some of what I share will be my story, some the stories of others that I was fortunate enough to be brivvy to,\
After I was diagnosed with constant AFIB I thought the verdict was that I couldn't do anything but eat, sleep and breathe. I had occasional bouts of AFIB that left me fatigued at times, sometimes breathless with chest pain. There is a warning for you. Listen to your body it may tell you more than a doctor. My cardiologist had given me a machine to monitor those bouts. They lasted less than a year before I was in constant AFIB. That meant I couldn't walk more than a few feet before I had to sit and catch my breath. Any exertion, even reaching for something left me breathless. My husband Sonny is a great cook bit I coulddn't finish a meal I was so tired. I had "brain fog" so I couldn't think clearly.I had given myself a deadline to finish my book that summer. I never would have made it without the help of my friend Cynthia Sucher who edited it. How frustrating! She was dealing with someone who couldn't think clearly. That book No Women Allowed would never have become a Kindle book on Amazon. I am forever grateful. I had a number of AFIB bouts before that constant one. My cardiologist said "Yup. you've got it. Constant AFIB. "Nothing can be done." I was shocked. A Pacemaker? "No. you are not a candidate." He walked us to the front door." you can check Shands" his voice trailed off.
It was the beginning of my search. Surely there was some kind of help. My family (Sonny, my step daughter and her partner traveled hundreds of miles to doctors, specialists, and testing centers to find an answer. The answer was the same (even Shands) No treatment No cure. One cardiologist sent me to the Advance Lung Disease Center in downtown Orlando. My doctor called me at home that night. "You don't belong here. There isn't anything wrong with your lungs. It's your heart. I have a colleague who can help." Before I continue to tell you how I finally found my answer I want to tell you about the person in an AFIB group on Facebook who really changed my life. He oe she made me do a 360 in my thinking.It's possible that book could change your life or the life of someone you know.
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